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In Depth: Chinese With Rare Diseases Face Painful Predicament — Affordable Yet Unavailable Drugs

2021年05月13日 20:02 来源于 财新网
Insufficient domestic production and unstable supply from overseas threaten the quality of life of patients with easily treatable conditions
Even after a rare disease is identified, doctors may feel helpless because the drugs their patients need may not be available in China. Photo: VCG

Xu Kai and her family smashed 1,000 boxes of tablets used to treat her 8-year-old daughter’s rare genetic disorder.

The latest shipment of the medicine, which Xu had been buying through purchasing agents since her daughter was born, turned out to be fake.

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